The list below is collapsed. Click on the >> to expand the section you want to read | ||
| Peer Support | ||
>>  (2006-07-10 08:38:11) | ||
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Friends are very important to all of us and especially for young people with chronic illnesses like arthritis. The DREAM team recently studied the experiences of young people attending the residential summer break from the perspective of peer support and the results have been recently published in
British Journal of Occupational Therapy 2005;68(12):567-573 Hackett J, Johnson B, Shaw KL, McDonagh JE. Friends United. An evaluation of an innovative residential self-management programme in adolescent rheumatology.
If you are interested in reading the paper, please ask a team member for a copy. | ||
| Training issues in Adolescent Health | ||
| >> (2007-08-29 10:33:48) | ||
There are currently no formal training programmes in adolescent health in the UK. Members of the DREAM team in addition to colleagues at Birmingham Children's Hospital, conducted a survey of staff to determine unmet training needs and two thirds of respondents reported that they had had no training in adolescent health. The paper is now published...
If you are interested in reading more, please ask a member of the team for a copy of the paper... | ||
| Transitional Care | ||
| >> ARC "RAP Project" 2001-2004 (2007-08-29 10:26:29) | ||
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Papers published in the medical literature are listed below for the interested reader.
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| >> Other papers written by DREAM team (2010-08-07 10:38:26) | ||
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2000 McDonagh JE, Southwood TR, Ryder CAJ. Bridging the Gap in Rheumatology: Ann Rheum Dis 2000;59:575-584
McDonagh JE, Foster H, Hall MA, Chamberlain MA on behalf of the BPRG. Audit of rheumatology services for adolescents and young adults in the
McDonagh JE. The Adolescent Challenge. Nephrol Dial Transplant 2000;15:1761-1765
2003 McDonagh JE, Kelly DA. Transitioning care of the pediatric recipient to adult care-givers. Ped Clin N Am 2003;50:1561-1584
2004 Bailey KM, McDonagh JE, Prieur AM. Systemic juvenile idiopathic arthritis presenting in a young child with long-term disability as an adolescent. Ann Rheum Dis, 2004;63:1544-8.
2005 McDonagh JE. Growing up and Moving on. Transition from pediatric to adult care. Pediatric Transplantation 2005;9:364-72.
Hackett J, Johnson B, Shaw KL, McDonagh JE. Friends United. An evaluation of an innovative residential self-management programme in adolescent rheumatology. Br J Occupational Therapy 2005;68 (12): 567-573.
2006 McDonagh JE, Walker V, Foullerton M, Robertson L, Gupta K, Diwakar V. Young People – Lost in Transition (letter). Arch Dis Child 2006 Feb;91(2):201.
McDonagh JE, Viner R. Lost in Transition? Between paediatric and adult services. Br Med J 2006;332:435-436
Jordan A, McDonagh JE. Transition. Getting it right for young people. Clinical Medicine 2006;6:497-500 McDonagh JE, Hackett J. (editorial) Growing up Moving On – in Occupational Therapy. British Journal of Occupational Therapy 2006;69(9):393.
2007 Jordan A, McDonagh JE. Recognition of emerging adulthood in
McDonagh JE.Transition of care from paediatric to adult services in rheumatology Arch Dis Child 2007; Sep;92(9):802-7.
O’Connor D, McDonagh JE. Improving care for young people with chronic health problems. Student Br Med Journal 2007;15:173 (editorial)
McDonagh JE, Kelly D. Transplans-ition: Transplantation and Transition (editorial). Pediatr Transplantation 2007 ;11(6):578-81
McDonagh JE. Transition of Care. How should we do it. Paediatrics and Child Health 2007; 17:480-4 2008 McDonagh JE. The importance of developing rheumatology services for adolescents. Future Rheumatology 2008;3:133-141 McDonagh JE. Young People first – JIA second. Arthritis Care and Research 2008; 59:1162-1170 McDonagh JE, Hackett J. Growing Up in School with a chronic condition – the role of health professionals. British Journal of School Nursing December 2008/January 2009;03(8):385-392 McDonagh JE, Hackett J. Asking the Experts: Exploring the self-management needs of adolescents with arthritis." Arthritis Care and Research 2008; 59:1199-1120 Bidwell C, Bolt I, McDonagh JE. Cardiovascular Disease Risk Awareness in Systemic Lupus Erythematosus Patients" Arthritis Rheum 2008 Nov 26;58(12):3971-3972. 2009 Bidwell, C, Bolt I, McDonaghJE. Let’s talk about sex! J Rheumatol 2009 Jun:36(6):1345 McDonagh JE, Shaw KL. Health Care Transition Counseling forYouth with Arthritis. Comment on the article by Scal P et al Arthritis Care and Research 2009 Aug 15;61(8):1140-1.
McDonagh JE, Kaufman M. TheChallenging Adolescent. Rheumatology ( McDonagh JE,Kaufman M. Transitionfrom paediatric to adult care post solid organ transplantation. Current Opinions in Organ Transplantation 2009;14:526-532 2010
Tattersall R, McDonagh JE. The Rheumatology Perspective. British Journal of Hospital Medicine 2010;71:315-319 McDonagh JE, Kelly DA. The challenges and opportunities for transitional care research. Pediatric Transplantation 2010 June 17 Epub ahead of print | ||
| Vocational issues for Young People | ||
| >> (2006-07-10 08:40:01) | ||
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In 2005, we carried out some research looking at vocational issues for young people with chronic illnesses like juvenile idiopathic arthritis. This was essentially in 2 parts.
The first part involved a focus group of young people with JIA attending BCH who met to discuss how they felt that JIA affected their career opportunities. For a summary of the results, read on....! This has been published in British Journal of Occupational Therapy 2006;69(3):98-105.
Ask a team member if you are interested in seeing the whole article.
The second part involved national surveys of occupational therapists to determine their perceived role in addressing vocational issues with adolescents with JIA. For a summary of the results, read on....! |
